Is Medical Debt a Social Determinant of Health?
Medical Debt has largely been viewed as a financial burden. While studies have linked Medical Debt to decreased savings, reduced health access, foreclosure of homes, and loss of income, there has been little to no research exploring Medical Debt’s effect as a social determinant of health. While Medicaid expansion via the Affordable Care Act has decreased overall Medical Debt, data on this phenomenon fails to adequately address the broader issue: the need to isolate statistically Medical Debt’s association with patient access to care. A sensible first step to explore this phenomenon is to use Medicaid expansion as a proxy for reduction of medical debt, and mine Big Data accordingly. Although publicly available and organizationally-owned datasets offer rich data, their breadth of variables are bound by organizational constraints, thus limiting our ability to investigate Medical Debt’s impact on health outcomes. If these limitations could be overcome, Big Data could better inform policymakers how to alleviate Medical Debt’s burden as a potential social determinant of health.
Two major frameworks exist for social determinants of health. First, the World Health Organization (WHO) lists ten social determinants of health: social gradient; stress; early life; social exclusion; work; unemployment; social support; addiction; food, and; transport1. Second, the Centers for Disease Control (CDC) offer a five-part framework: economic stability; education; social and community context; health and healthcare, and; neighborhood and built environment. Both frameworks complement one another and enhance our understanding of potential social determinants of health.Health policy here in the United States needs to be informed at both international and national levels. The WHO framework helps us to explore social determinants comparatively from an international perspective, while CDC’s framework is tailored to localized contexts unique to the USA. However, neither framework explicitly lists medical debt as a social determinant of health. Were medical debt included in the CDC model, it might be listed in at least two of the five major categories: economic stability, and health and healthcare. However, neither of these broad level categories include medical debt as a subset.
Medical debt is particularly unique when compared to factors listed in either the CDC’s or WHO’s frameworks. In particular, medical debt can be inordinately impacted by a single catastrophic cost health event2. Also, medical debt is a social determinant that can impact individuals from almost all income ranges. Finally, medical debt, even when it is not a single catastrophic event, is impacted by healthcare inflation, which far outpaces general inflation of other costs of living (3.00% vs. 1.88% from 2011 to 2016, respectively)3,4. Based on these distinctions, we believe medical debt should be explored as a potential social determinant of health, thus informing data-driven interventions in healthcare.
One point-of-entry for exploring this phenomenon is Medicaid. While implementation of the Affordable Care Act (ACA) led to increased health coverage for nearly 32 million Americans5, the umbrella of ACA still left over 28 million without insurance6. Millions of Americans claim inadequate coverage of services or exorbitant premiums2. To truly understand the financial burden of healthcare, one should not only account for insurance premiums, but also out-of-pocket costs and monetary funds owed for previous services7. While insurance coverage can contribute to medical debt, one must also appreciate that provider’s sky-rocketing costs for procedures and prescriptions exacerbate this problem2. TransUnion’s Healthcare Report in 2016 stated that 77% of bills greater than $500 went unpaid in 2016, and over 51% of these patients owed more than $1000 to their providers8.
One of the tenets of ACA was the expansion of Medicaid programs via federal funding. This allowed state-wide Medicaid programs to increase health insurance to individuals previously not qualified. Medicaid expansion led to a substantial 5.3% decrease in medical debt to 16.0% nationally in individuals under the age of 65 who had trouble paying medical bills9. Some may argue insurance coverage has resolved the issue of medical debt. However, it has yet to be seen what happens to individuals, who despite gaining insurance under Medicaid expansion, must account for medical debt due to the program’s eventual phase out. Despite Medicaid expansion’s merits or limitations as a solution to medical debt, implementation of Medicaid expansion provides a proxy for debt reduction, thus exploring its association with health outcomes. Admittedly, there are multiple factors impacting health outcomes for patients receiving Medicaid. This challenge emphasizes further the need for fuller datasets that allow Big Data to statistically parse out the complex interdependence of determinants of health outcomes.
Albeit inconclusive, some evidence suggests medical debt may manifest as a social determinant of health. Medical debt can be considered a risk factor for reduced health access and poorer health status in individuals, with these individuals rationing medical care4,10. In one study, 24% of individuals with medical debt abstained from going to their original site of treatment, with 18% delaying care when necessary, and 10% only visiting Emergency Departments to obtain care11. Furthermore, an individual under financial duress may decide to forgo medical treatment due to social pressures such as pride and embarrassment4.
A national survey found that to pay medical debt, approximately 44% of individuals with outstanding medical debt used a majority of their savings4, depleting precious resources they need for food, rent, prescriptions, etc.7 The linkage between self-reported health status and healthcare usage in a setting of low financial resources can lead to increased medical debt7. Another study reported that when individuals utilized home equity to defray incurred medical expenses, medical bills led to foreclosure of homes 70% of the time and mortgage defaults in 23% of cases12. Yet another study found that households with medical debt over two percent of their income was the greatest single variable associated with bankruptcy13. Additionally, over 38.2% of debtors lost over two weeks of income due to illness and 6.8% of individuals lost wages due to care for an ill family member, diminishing their ability to pay their medical debt14. Some individuals frequently utilized payday loans, credit cards, and other forms of credit to pay off medical bills, further incurring financial debt15.
Ideally, the best approach to understanding medical debt would be to directly mine data of individual patient records, regardless of Medicaid eligibility, and analyze variance to explore associations between debt and health outcomes. However, challenges to this approach are neither technical nor methodological in nature, but instead organizational.
Big Data is defined as having the “four V’s” – tremendous Volume, Velocity of creation, generated in a Variety of ways, and Veracity of data16,17. Note, however, the scope of Big Data is dependent on the discipline or field in which it is created. Computational experts have created incredible warehouses of healthcare data recorded at the individual patient level, and analytics experts continue to create cutting edge methodologies for analyzing and visualizing these massive datasets or Big Data. Yet organizationally, the scientific community needs to embrace further Big Data’s complexity by addressing issues like transparency that might be mistakenly viewed as banal. The challenge for Big Data in healthcare, is much more constrained by organizational complexity than by technological efficiency18. Therefore, simply getting access to data may prove to be more challenging than analyzing the data.
While the CDC’s Behavioral Risk Factor Surveillance System (BRFSS)19 provides access to a wealth of publicly available data, these data pose limitations. One major limitation is that they understandably do not share data in which individual patients serve as the unit of record. Therefore, analyzing variance for how a phenomenon like medical debt manifests at the individual level is, by design, impossible. A second limitation of these data is that for rural, less populated areas, results are based on estimations rather than direct observations. While methodologically sound, errors inherent in such estimations are particularly problematic for phenomena like medical debt, which may be more pronounced in poorer, rural areas. Medical debt’s disproportionate effect on rural communities should be a cause of great concern for the medical profession. Medical debt’s potential association with patient health outcomes calls for Big Data research within the medical community, with goals of elucidating data driven solutions that can improve patient care outcomes in rural and urban communities.
In a research environment where it may be easier to isolate an individual’s genetic code than it is to access data on their level of medical debt, Big Data needs to provide information that is relevant20 and more importantly, actionable. Admittedly, optimization of Big Data for patient medical debt research will take years. In the interim, however, we believe a sensible adjacent possible21 step is to explore health outcomes data prior and subsequent to Medicaid expansion via publicly available and/or institutionally owned Big Data. Health outcomes in management of chronic conditions such as assessing the level of Diabetes control by understanding access to care, number of visits to health professional, proximity to care, and cost of insulin and diabetic drugs are a few of the many variables that can be explored through Big Data. Medicaid Expansion offers the scientific community an opportunity to use an exact cutoff date to explore whether Medicaid Expansion affects medical debt reporting and if health outcomes are positively or negatively impacted. Recognizing the potential complexity of this phenomenon as more than just solely financial, a patient’s medical debt may have as much bearing on their health outcomes as other social determinants identified by either the CDC or WHO.
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